Brooke Eby, a social media influencer known for chronicling her life with ALS, has died at age 37.
Key facts
- •Brooke Eby was diagnosed with ALS at age 33.
- •She passed away on Oct. 1 at the age of 37.
- •Eby founded the community organization ALStogether.
- •She frequently used humor in her social media videos to raise awareness about ALS.
- •Guthrie interviewed Eby on TODAY in 2023 regarding her perspective on living with a terminal diagnosis.
Savannah Guthrie announced on TODAY on Oct. 5 that social media influencer Brooke Eby died from ALS on Oct. 1. Eby, who was 37, gained a large online following by sharing videos about her experience with the disease after receiving her diagnosis at age 33.
Advocacy and Online Presence
Eby used her platforms, including TikTok, to share the realities of living with a terminal diagnosis while maintaining a lighthearted approach. She founded ALStogether, a community dedicated to supporting people affected by the disease. Through her content, she aimed to raise awareness and encourage conversations about ALS, hoping to drive pressure and resources toward finding a cure or treatments.
Reflections on Her Approach
In a 2023 interview on TODAY, Eby described humor as her "superpower" and a tool to help others engage with the difficult subject of terminal illness. Guthrie praised Eby's courage and openness, noting that even as her physical condition declined, she remained committed to sharing her journey with her followers.
Timeline
- 2023Brooke Eby appeared on TODAY and wrote an essay for TODAY.com regarding her experience with ALS.
- Oct. 1Brooke Eby died from ALS at the age of 37.
- Oct. 5Savannah Guthrie announced Eby's death on TODAY.
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This article was independently rewritten by ManyPress editorial AI from reporting originally published by NBC News Health.
